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International Childhood Cancer Day 2021: Targeting Childhood Cancer through the Global Initiative for Cancer Registry Development (ChildGICR)

International Childhood Cancer Day 2021 Home

To mark International Childhood Cancer Day (15 February), the International Agency for Research on Cancer (IARC) is spotlighting an initiative to improve data on cancer in children.

St. Jude Children’s Research Hospital (located in Memphis, Tennessee, USA) and IARC launched a bilateral collaborative agreement called “Targeting Childhood Cancer through the Global Initiative for Cancer Registry Development (ChildGICR)” in May 2020. This agreement was established to complement and support the World Health Organization (WHO) Global Initiative for Childhood Cancer. The collaboration between St. Jude and IARC is an expression of the shared interest of the two institutions in reducing the global burden of childhood cancer.
Main objectives of ChildGICR

Main objectives of ChildGICR

The overall aim of this collaboration is to improve the quality and availability of data on cancer in children, particularly in countries with limited resources. To attain this ambitious goal, scientists from IARC and St. Jude are developing three areas of action.

  1. Implementation in countries
    Countries that are initially selected to join this initiative will be guided through the implementation of international cancer registration principles and standards during site visits, national workshops, and follow-up, according to the profile and registration situation of each country. The aims of implementation are to develop country-specific guidelines, set targets, and develop a follow-up plan, in line with international standards and with the involvement of national stakeholders. Consultations are under way in Mexico and are starting in three other countries.

  2. Education strategy
    After an assessment of education needs, educational content will be developed in collaboration with national experts, members of the GICR network of regional trainers. These trained trainers will then disseminate their acquired expertise in the registration of childhood cancer within their region and globally.

  3. Research studies
    Selected challenges will be analysed to strengthen the quality and availability of data on cancer in children. The initial areas of research are:
    • barriers to data sharing and the development of best practices;
    • classification of childhood central nervous system tumours, and registration of non-malignant central nervous system tumours;
    • the financial burden borne by families affected by cancer in a child; and
    • quantification of the cost of registration of cancer in children.

Visit the website

Read the press release IARC Press Release 295
IARC and St. Jude Children’s Research Hospital partner to expand global childhood cancer registration
Download PDF
Read the Q&As
Questions and Answers (Q&A) with Dr Eva Steliarova-Foucher
Read the Q&A

Questions and Answers (Q&A) with IARC Director Dr Elisabete Weiderpass
Read the Q&A
View the infographics
Infographics

 

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